OHSU called me yesterday. They have my paperwork and the go ahead from insurance. This has taken FOREVER so as much as I am not looking forward to the SPECT scan, I am glad it's getting moving. This is not the surgery, just ANOTHER test.
I told the family. They are preparing in their own ways. I will freeze all of the crockpot meals I can in preparation. Ethan will need to get himself up and to the MAX every morning. I will likely be in the hospital for about 5 days, attached to the wall, waiting to have a seizure so I can be shot up with radioactive materials. So I can come home.
Good times.
Some derby badasses made us a GoFundMe.
Operation Wrecktemporal Lobe
I am still speechless. I have had friends, I have had close friends. I have never had friends who were SO on my side. I feel like I have a constant cheering section. I also feel unworthy of the attention. Who the hell am I to have such amazing people? Derby is the best thing that ever happened to my family. My outlook on life has changed so much in the last year. I wouldn't change a thing.
I cried and blubbered for 24 hours straight, it felt like. At one point I was in the shower and just broke down. It was a Tobias Funke moment.
The boys are even speechless. Well, the twins. Ethan is like: "Why are people doing this? Why are they so nice?" My poor child. Already thinks the entire world is out to get us. So jaded. I blame myself. I wasted so many years being so damn angry with everything.
Evan and Dylan are different. Dylan was like: "I'm so glad we came to Portland. We found our people. This is our home"
It really is bro, it really is.
Next we wait for insurance to get their crap together so I can get to UCSF to have that fun test. AND THEN I will get a surgery date. So many things. SO MANY THINGS. Also, my Neuro is constantly in contact with me, because did I tell you that my brain has decided to have a near constant party without my permission? I had over 10 seizures the other day. (Not Gran Mal, or Tonic Clonic. Just little ones. Still crap. )
I often get caught up in all this and forget to stop and look around. At practice on Sunday I was doing all the things. Don't get me wrong, I am still super slow and a little baby deer like, but I haven't seen chair in weeks. This upcoming Sunday is a new class of 101'ers and I'm excited to skate with them. Who knows, maybe I will finally be able to do everything.
Life is good. Despite the fact that my brain is an asshole, life is really good.
That's all folks. I'll let you know when something else is exciting.
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